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News & Events
Aboriginal Ear Health Stakeholder Meeting (By invitation only)Acknowledging the enormous efforts in ear health programs across WA, we invite stakeholders to assist us in establishing research priorities.
News & Events
Every Friday: Child Health Research Seminars 2014Associate Professor Roz Walker has been involved in research, evaluation and education with Aboriginal communities building local capacity for 30 years.
News & Events
The Kids researcher named WA Youth Awards finalist25 year old Noongar woman Tiana Culbong, a The Kids Research Institute Australia researcher, has been named as a finalist in the WA Youth Awards.
News & Events
New project to make FASD history in the PilbaraA new project aimed at reducing Fetal Alcohol Spectrum Disorder (FASD) in the Pilbara has been launched today in South Hedland.
Research
Moort Vax Waangkiny: Understanding reasons for routine vaccine uptake among Aboriginal children aged <5 years in Perth (Boorloo) metroAboriginal children aged younger than 5 years in Perth (Boorloo) have lower vaccine uptake compared to non-Aboriginal children.
Research
The Second Research Report: patterns and trends in mortality of Western Australian infants, children and young people 2004-2005This report was commissioned by the Department for Child Protection as an ongoing initiative to continue the work initiated by researchers at the Telethon Kids
Research
Interpretation of recent sudden infant death syndrome rates in Western AustraliaData for recent years show a shift away from a classification of 'SIDS' towards a classification of 'unascertainable', particularly for Aboriginal infants.
Research
“Our culture, how it is to be us” — Listening to Aboriginal women about on Country urban birthingThe Birthing on Noongar Boodjar project Aboriginal women's data represents four generations of women's stories, experiences and expressions of childbearing
Research
Barriers and Considerations for Diagnosing Rare Diseases in Indigenous PopulationsAdvances in omics and specifically genomic technologies are increasingly transforming rare disease diagnosis. However, the benefits of these advances are disproportionately experienced within and between populations, with Indigenous populations frequently experiencing diagnostic and therapeutic inequities. The International Rare Disease Research Consortium (IRDiRC) multi-stakeholder partnership has been advancing toward the vision of all people living with a rare disease receiving an accurate diagnosis, care, and available therapy within 1 year of coming to medical attention. In order to further progress toward this vision, IRDiRC has created a taskforce to explore the access barriers to diagnosis of rare genetic diseases faced by Indigenous peoples, with a view of developing recommendations to overcome them.
Research
Meningococcal serotype W septic arthritis: Case series in childrenThe epidemiology of invasive meningococcal disease has changed over the last decade and there has been an increase in cases caused by serogroup W135, particularly in Indigenous children. Extra‐meningeal and atypical presentations are associated with serogroup W and may delay diagnosis and therefore appropriate treatment. Public and clinician awareness are essential in facilitating effective new vaccine schedule implementation.