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Online health literacy resources for people with intellectual disability: protocol for a grey literature scoping review

People with intellectual disability are at risk of poor physical and mental health. Risks to health are compounded by poor health literacy, that is, reduced capacity to access health services, respond quickly to changes in health status and navigate care pathways. Building health literacy skills is a strength-based way to increase health and optimise the use of healthcare services. The internet is a primary source of health information for many people, including people with intellectual disability and their families. 

Parent-reported outcome measures evaluating communication in individuals with rare neurodevelopmental disorders: A systematic review

Communication impairments are a leading concern for parent caregivers of individuals with rare neurodevelopmental disorders. Clinical trials of disease modifying therapies require valid and responsive outcome measures that are relevant to individuals with RNDDs. Identifying and evaluating current psychometric properties for communication measures is a critical step towards the selection and use of appropriate instruments. 

The education word gap emerges by 18 months: findings from an Australian prospective study

The idea of the '30 million word gap' suggests families from more socioeconomically advantaged backgrounds engage in more verbal interactions with their child than disadvantaged families. Initial findings from the Language in Little Ones (LiLO) study up to 12 months showed no word gap between maternal education groups.

Landmark language study draws to a close - but the work is just beginning

A joint initiative between The Kids Research Institute Australia, The University of Western Australia, the University of Kansas and Nebraska University, it is the world’s only study to conduct such a detailed assessment of language and literacy development from infancy through the formative adolescent years.

ORIGINS reaches key milestone

ORIGINS, a collaboration between The Kids and the Joondalup Health Campus, has achieved a major milestone – recruiting its 1000th family.

Looking at language

Hearing your child’s first word is a precious moment for any parent but while most children begin to talk within 12 to 24 months of age, some take much longer.

Kids with ADHD struggling at school

A study by The Kids Research Institute Australia has found children with Attention Deficit Hyperactivity Disorder (ADHD) have significantly worse school outcomes.

Rethink needed on literacy intervention

A new study by The Kids Research Institute Australia has found current early intervention programs are failing to identify a large proportion of children with language an

Funding boost to help researchers better understand how language develops

Telethon Kids Institute researchers have been awarded an Australian Research Council grant to explore how testosterone levels in the womb can impact on a child'

New research links poor language to lack of Vitamin D in womb

New research has found that children of mums who had low levels of Vitamin D during pregnancy are twice as likely to have language difficulties.