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The Journey Together initiative aims to improve the life trajectories for Aboriginal children across three sites in Western Australia – Port Hedland, Newman and Perth.
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Derbarl Yerrigan Health Service (DYHS) has developed a holistic paediatric service unit anchored in primary health care and underpinned by care coordination provided by an experienced nurse and multi-disciplinary team.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.
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