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Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Publications

Publications from 2016 dating back to 1993 of AussieRett researchers, showing the research work into Rett syndrome and related disorders.

Survey results

Download the Young Minds Matter report and overview, watch video snapshots and access survey results and tables.

Let’s Get Active!

Discover resources and science activities for kids for the topic 'Let's Get Active!'.

News & Events

January school holiday workshops

The The Kids School Holiday Workshops are back on this January holidays with a bigger and bolder program of fun and educational workshop for kids!

News & Events

Discovery Centre lightens the load for hospital families

The opening of the Discovery Centre has made trips to Perth Children's Hospital much more enjoyable for mum Alianna Celisano and her three boys.

News & Events

Free excursions to The Kids

Register your interest to participate in a FREE pilot excursion for our brand-new program, Microscopic World!

Equipment available – portable/community based

Portable equipment is available to enable bedside and community-led research in rural and remote communities, including Indigenous communities where children are disproportionately affected by chronic respiratory conditions.

Research Track Record

The discoveries that have set our research apart primarily relate to the factors early in life that cause life-long respiratory problems.