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About Rett syndrome

Rett syndrome is one of the 8,000 rare genetic diseases that collectively affect up to 10% of the population.

Why get active?

Anyone who engages in physical activity, regardless of how much they do, can achieve mental, physical and social health benefits, resulting in benefits to their quality of life.

News & Events

3rd European Rett Syndrome Conference, October 17-19, Maastricht, The Netherlands

Following last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.

News & Events

MECP2 duplication syndrome in the news

Our own Dr Helen Leonard was recently featured on Today Tonight. MECP2 duplication syndrome, which more frequently affects boys, is one of the Rett syndrome...

News & Events

Starting or returning to school after the holidays

We know many autistic children may be more sensitive to transitions so may need some extra supports at this time.

News & Events

Using visual supports

In this blog, Senior Speech Pathologist Sally Grauaug and Speech Pathology Clinical Lead Aria May discuss the use of visual supports.

News & Events

Using daily routines to support communication

In this blog, Senior Speech Pathologist Sally Grauaug and Speech Pathology Clinical Lead Aria May discuss how daily routines can facilitate the development of your child’s communication skills.

News & Events

Boosting literacy by reading with children

In this blog, Speech Pathologist Genevieve Wilmot shares the strategies caregivers can use at story time with their child to make book sharing fun.

News & Events

Understanding anxiety around uncertainty

In this blog, research project co-ordinator Rebecca Kuzminski discusses anxiety related to uncertainty, why this is a particular challenge for many autistic children, and new research CliniKids is conducting to help parents support their child with managing uncertainty-related anxiety.

News & Events

Developing emotional regulation skills

This blog aims to explore what emotions are, why they are important, and how we can support children to develop their ability to understand and express their own emotions in a healthy way.