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Many girls and women with Rett syndrome experience seizures. We wanted to know if there were any factors that influenced the age when seizures first developed.
We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
ORIGINS is an interventional cohort study, meaning participants receive timely feedback and an action plan to address any potential abnormalities.
News & Events
Associate Professor Debbie Palmer Awarded Stan Perron Charitable Foundation FellowshipThis fellowship will assist Associate Professor Palmer in her large-scale food allergy prevention trials.
News & Events
ORIGINS is pleased to announce the 2024 recipient of its inaugural PhD Student AwardMiss Braddon will be awarded with $15,000 to go towards her research project, DreamStart
News & Events
Better Your BioMood: First Findings Published in Origins SubprojectFirst Findings Published in Origins Sub-Project
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ORIGINS named in multi-million dollar investment towards child healthORIGINS named in multi-million investment towards child health
The impact of ground-breaking research is helping ORIGINS families
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ORIGINS Family Fun Day 2023Families gathered in the autumn sunshine to celebrate ORIGINS