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Family resources

Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.

How to get active

Considering one’s own capacity, activity should be included into everyone’s daily routine to make sure these recommended levels of activity are being as closely met as possible, for everyone to secure the most benefits.

Toolkit of uptime strategies

Learn about a practical toolkit of strategies to maximize uptime for children with Rett Syndrome, promoting engagement and facilitating meaningful activities.

News & Events

The InterRett database: Looking back and looking forward. What we have done and can do with your involvement!

Click the photo below to download Dr Helen Leonard's online webinar hosted by Rettsyndrome.org.

News & Events

Meeting with families in China

Prof Helen Leonard and Dr Jenny Downs recently visited Shenzhen, China to meet Chinese families and child neurologists from the Shenzhen Children's Hospital.

Research

Tracking of Vitamin D status from childhood to early adulthood and its association with peak bone mass

There are moderate associations between vitamin D status measured in prepuberty, adolescence, and early adulthood

Research

Early vaccination protects against childhood leukemia: A systematic review and meta-analysis

Growing evidence supports a role for infection in the etiology of ALL and the involvement of immune systems suggests that vaccination may also play a role.

Research

Replication and Excretion of the Live Attenuated Tetravalent Dengue Vaccine CYD-TDV in a Flavivirus-Naive Adult Population: Assessment of Vaccine Viremia and Virus Shedding

We assessed replication and excretion of the live attenuated CYD-TDV into biological fluids following vaccination in dengue-naive adults in Australia.

Research

Infant nutrition and maternal obesity influence the risk of non-alcoholic fatty liver disease in adolescents

We examined the association of maternal factors and infant nutrition, with the subsequent diagnosis of NAFLD in adolescents

Research

Peer-led Aboriginal parent support: Program development for vulnerable populations with participatory action research

The themes that emerged from the data and addressed the methodological aim were the need for safe communication processes; supportive engagement processes and supportive organisational processes.