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News & Events

For all of our budding young actors…

We are looking to create exciting new online resources for our families to utilise, which will include how-to videos, as well as patient perspective interviews.

News & Events

Diabetes Australia app

Diabetes Australia have released an app to make living with or caring for someone with diabetes a little easier.

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Find out how to participate in our research and community groups.

Research

Comparing Parental Well-Being and Its Determinants Across Three Different Genetic Disorders Causing Intellectual Disability

This cross-sectional study examined parental well-being in caregivers of children with one of three genetic disorders associated with intellectual disability.

Research

The clinical utility of lung clearance index in early cystic fibrosis lung disease is not impacted by the number of multiple-breath washout trials

This study aimed to determine if relationships between LCI and clinical outcomes of CF lung disease differ when only two acceptable MBW trials are assessed.

Research

Feasibility of a commercial smartphone application for dietary assessment in epidemiological research and comparison with 24-h dietary recalls

Our study tested the relative validity of a smart phone app for uses as an epidemiological dietary assessment tool, compared with a standard assessment method.