Skip to content
The Kids Research Institute Australia logo
Donate

No results yet

Search

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.

Caring for caregivers

When you build routines into your day to increase uptime, it doesn’t only affect the person with Rett syndrome; it affects the whole family.

Participate in Research

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians

News & Events

Visit to Shenzhen, China

Helen and Jenny visited Shenzhen in the south of China twice during 2013 to talk with clinicians and families at the Shenzhen Children's Hospital.

Young Minds Matter

Young Minds Matter is the second Australian Child and Adolescent Survey of Mental Health and Wellbeing.

Join Discovery Centre + Schools

Thank you for confirming your subscription to the Discovery Centre + Schools mailing list. Look out for information on our schools program, ideas, lesson plans and more in your inbox soon!

Get involved

Whether you're looking to join our Community Groups, or participate in upcoming research projects, this is the place for you.

Let's Get Active!

Hands-on science lesson plans for teachers related to the topic 'Let's Get Active!'.

Our supporters

Learn more about the supporters of the Wal-yan Respiratory Centre